Monday, March 20, 2023

Spoonful from a Spoonie- Driving

Pinterest Board- Ride Like That 

Hello my beautiful Flames,

I hope everything is great with you. In this post I'm going to answer the question I've been asked a lot: "Why don't you drive?"

Because its none of these cars!!!!!!
https://www.pinterest.com/indigo_flame/ride-like-that/


Lol. Seriously, yes, but actually no. My big Brother calls me Boujie because I don't drive when UBER exists and I only go Home & to work & everything I want or need can be delivered, so Like, whats the point?

Currently its this new medication, Benlysta, is 1 of 2 medications where it is advised on the label: Do Not Operate Heavy Machinery while using this medication.
Don't forget to mention the allergy medication which can cause cardiovascular abnormalities, the pain pills, and the natural side effects from Lupus itself.

so far I'm experiencing Light Sensitivity in eyes and head

Numbness and Cramps in legs & Toes

Chest tightness

dizziness

Thirst

Spasms (hands, toes,

loss of balance

sudden loss of mobility

Cotton wool

this is all after the previous stomach medication used for Colitis that caused Temporarily Blindness. Do you see how this affects most of my body?

If you've been on these types of medications from the age of 11, you would really worry about these symptoms happening all at once while behind the wheel of a car. From a young age I've had to wonder how my chronic illness can affect others. Its for my safety and yours.
Today I had them all happen at once to where I'm sure it looked like I was having a seizure on camera & in front of my coworkers, as I couldn't move my feet, legs, hands, neck or lips. It could have been a seizure...? I did have those at one point as well. 

Any other silly questions? I'd like you to follow my pinterest page: Lovin' Spoonful for all the funny memes that I've compiled about being a woman with lupus.  I hope you find it enjoyable. Laughter is the best medicine in my mind, besides Cannabis & popsicles. 

My recent doctor appointment on the 13th with the PA instead of my normal Primary care Specialist turned me into an angry black woman when they didn't want to draw my blood, but instead wait 2 weeks until my next infusion. Made more sense to me to check the bloodwork and see if this medication is working before we load up with another dose & it makes things WORSE. The symptoms listed above, that I've been having lately have gotten worse & my blood pressure was spiked abnormally during that appointment. Turns out, I also have an infected Gum/Tooth that will be looked at this week, hopefully. Being an introvert that has to advocate for myself is the scariest part of life for me right now. I do not recommend. These infusions are a living nightmare for me: I've been looking at my actual future I did not want since the age of 11. I just wanna continue to be a Pink Unicorn filled with Cheese, Potatoes and THC. 

Again: This is not sponsored nor is any copyright infringement intended.

Don't forget to follow my instagram page: @indigo_flame

facebook: https://www.facebook.com/TriangularRainbows

etsy: https://www.etsy.com/people/DeeTreechild?ref=hdr_user_menu-profile

Pinterest: https://pin.it/SYlCJyf

If you have a problem, smoke about it. 

Peace!☮☮☮☮☮

Sunday, March 5, 2023

Passion Projects- Doll House



Hi everyone,

I hope you are having a wonderful day. For me, unfortunately, I woke up with yet another passion project in my head. This time its my Dollhouse Passion. Since I was 11, Dollhouses have brought me comfort as a major distraction from my Chronic Illness: Lupus. I would escape my hospital room and be wheeled to the corridor where the DollHouse existed and find all the little details never noticed before. 

They were indicative of the kind of orderly house I've always wanted: Neat, but lived in. Homey, but classic. Always something to look at, always something to craft, create or cook.

Over the years, I've admired styles and Dollhouse Connoisseurs from the early stages on youtube & found a few I admire. They've done smaller builds than I anticipate but their ideas have gotten a much larger fire re-ignited than I thought possible. Since I attempted the very first Barbie Build, the world has expanded so much more than I could have hoped when I was a kid.

 
etsy.com has so many shops dedicated to the decor of Dollhouses and my dream is to find all the items for Barbie, Addams Family & Austin Powers & my personal Build: An architects nightmare which is a combination of all 4, with a Bohemian vibe plus the Betelgeuse house. Bwa-haha!!!
Check out my dollhouse ideas on Pinterest: https://www.pinterest.com/indigo_flame/dollhouse/ 

Its gotta have a rooftop garden, roller skate carpet, a chicken coop, adorable Tea Set, fairytale core touches... I can't wait to start this new build. Steps are going to be included, even though they are my absolute enemy both in crafting and real life. 

Check back in a few months to see if I've made any progress at all, besides collecting the boxes for this new design. But this has to happen after I finish the caulk on the tub. in my actual house. Lol. 

Wish me luck!


Don't forget to follow my instagram page: @indigo_flame

facebook: https://www.facebook.com/TriangularRainbows

etsy: https://www.etsy.com/people/DeeTreechild?ref=hdr_user_menu-profile

Pinterest: https://pin.it/7kBGT2G

If you have a problem, smoke about it.

Spoonful from a Spoonie- Present in Pain

 Hello my beautiful flames. As always, I hope you are well.  What I am focused on this week is letting everyone know my exact pain levels so...